Hello and Welcome to Blue Sunflower!

I joined Substack in July of 2022, and originally created Blue Sunflower to share excerpts from my memoir in progress: of when my husband and I were raising Laura, our only child, with Congenital Heart Disease (CHD). I also write about living with long term grief as a bereaved parent. Occasionally, I share stories of my childhood, of life before becoming a parent, and about being an artist.

Our daughter Laura lived both an extraordinary and challenging life until her passing at 14 years of age. My stories portray Laura’s personhood, our family’s journey, and my role as her mother.

I share the highlights and the challenges our family endured; advocating for our daughter at home, in the hospital, and at school. In my writing, I recreate the seminal moments in Laura’s life and our life through the lens of being her mother. While describing each scenario, I share the thoughts, feelings and perceptions I had in each moment as the events unfolded.

Laura was a prolific writer who kept diaries, wrote nonfiction and fiction stories. I sometimes share her writing to give Laura voice, and to honor her own unique perspective.

Our story is about love, creativity, hope, faith, perseverance, resilience, joy and sorrow. My goal is to take you up close and personal, through a window into our experiences.

I hope to create awareness, offer moments of human connection, and bring more understanding and humanity into the world. I believe that this story beckons to be told and asks to be heard. The life lessons which erupt from Laura’s story are important pieces of Laura’s legacy and of our legacy as her parents.

I began writing Laura’s story in 2014, on weekends during the winter. As time went on and I began to write more frequently, I began to envision the reality of publishing my writing as a book. I decided that the first step was to get some of our story out into the world now, and not to wait the years it might take to finish the book.

I kept my memoir writing practice private for over 8 years until the day I took the plunge and created Blue Sunflower on Substack, and published my first post: When Life Gives You Lemons: Lemonade Stand in the ICU. ( link at end of summary)

Publishing on Substack takes courage. The positive responses I receive encourage me to keep writing and sharing. Your readership and support will help me to reach my goal of publishing my book.

Knowing that you are out there reading my work means a lot to me. I want to hear your thoughts! I appreciate any feedback you can offer. Click on the heart shaped icon or leave a comment in the speech bubble at the bottom of each post to let me know how you are feeling about my writing. If you prefer privacy, you can email me: susanffartwork@gmail.com

If you choose to subscribe to Blue Sunflower, you can become a free or paid subscriber. You can upgrade from free to paid at anytime. Many of my posts will remain free, with special posts for paid subscribers. I hope you will consider supporting my work.

All subscribers will receive new posts directly in your email in-box every time I post.

Thank you for discovering Blue Sunflower and for taking this journey with me.

With Love and Gratitude,

Susan

Read my first post from July, 2022:

Read a post about living with grief and loss:

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The Raw Truth: Memoir, reflections, anecdotes about parenting our daughter with Congenital Heart Disease (CHD) and on being a bereaved mother. I hope to inspire personal connections and create greater awareness and compassion in the world.

People

I am an artist and bereaved parent who writes the pivotal stories of my life of then and now; when we parented our daughter with Congenital Heart Disease and navigated the medical system, and now while living with grief and loss.